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Resources & Downloads
Here you will find useful information and resources to use as you navigate understanding aging, dementia and the provision of quality services and support.
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Videos
Here are some short videos that will help you better understand some of the symptoms and changes that may impact adults with an intellectual disability and dementia.
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Four Ways to Connect with Kindness. You can watch this video and learn some ways to communicate with someone with dementia.
Supporting Derek – A short video that shows you a little bit about dementia.
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What’s the Difference Between Alzheimer’s Disease and Dementia? A great video that helps understand what is meant by Alzheimer’s Disease versus Dementia.
Stand By Me
Supporting relationships between couples with an intellectual disability when one partner has a diagnosis of dementia.
Frequently Asked Questions
The best place to start is to establish a baseline using the NTG-EDSD tool. This will help you to track change over time and provides you with information to take to the health care practitioner.
Screening, with a tool like the NTG-EDSD, is a process of gathering and documenting information about changes over time. It can be done by family and staff. A diagnosis must be obtained by a qualified health care practitioner and involves the use of diagnostic tools that often provide scores. Many, but not all, people with an intellectual disability should be diagnosed using tools that have been developed specifically for this population.
It is highly recommended that both the adult with an intellectual disability and their family should be involved in talking about changes of concern and completing a screening tool. An early diagnosis of dementia can help both the individual, their family and staff to begin planning for the future.